Patient and Expert Videos
HEAR FROM THE AHP
COMMUNITY AND EXPERTS
The videos below are stories from real patients with AHP. Hearing their stories may help you further your understanding of the symptoms and trials your patients with AHP may face.
Two of Me: Living with Porphyria Documentary
In this documentary, patients from around the world share their experiences about living with AHP.
NICOLE’S LONG ROAD TO DIAGNOSIS
Nicole talks about her long journey to an AHP diagnosis, alongside Dr Angelika Erwin, a porphyria expert, who provides an overview of the disease, including symptoms and ways to test for AHP.
MEGAN’S UNPREDICTABLE REALITY
Megan, along with her mother and husband, discuss her struggles with the unpredictable nature of AHP symptoms and how it hinders many aspects of her life.
LEARN FROM A PANEL OF EXPERTS
Understanding Acute Hepatic Porphyria (AHP) is a series of videos produced in 2019, featuring a panel of multidisciplinary experts with first-hand knowledge of treating AHP.
DIAGNOSING AHP
Experts from multiple disciplines speak about what they look for when diagnosing AHP and how you can test for it.
IDENTIFYING MULTIPLE PATIENT ARCHETYPES WITH AHP
A panel of multidisciplinary experts discuss the basics of the disease and share their knowledge on the types, pathophysiology, and symptoms of acute hepatic porphyria.
Access Additional Resources
For more information about AHP and other forms of porphyria, please visit American Porphyria Foundation, Global Genes, National Organization for Rare Disorders, The Porphyrias Consortium, and the United Porphyrias Association. These independent organizations are dedicated to helping healthcare providers, patients, and their caregivers understand porphyria. Alnylam Pharmaceuticals does not endorse and is not responsible for the content on the sites that are not owned and operated by Alnylam.