It started with abdominal pain, nausea, and fainting.
I was treated for ulcerative colitis.
Then endometriosis and depression.
They said it was all in my head.
It’s not.

It’s acute hepatic porphyria.
— Megan, living with AHP
Uncover the disease >
Person diagnosed with acute hepatic porphyria (AHP)

Have you had severe abdominal pain
with other unexplainable symptoms?

You’re not alone. It could be acute hepatic porphyria (AHP), a rare disease often mistaken for something else.

Woman with symptoms

Common symptoms may be related to:

  • 1 Central nervous system
  • 2 Peripheral nervous system
  • 3 Cardiovascular system
  • 4 Cutaneous (skin) symptoms
  • 5 Gastrointestinal system
  • 6 Autonomic nervous system

AHP can look different in everyone, and its symptoms often mimic other conditions. That’s why it’s so often misdiagnosed.
If this sounds at all familiar—it could be AHP.
Take the first step toward answers.

Signs and symptoms of acute hepatic porphyria (AHP)

Learn the signs and symptoms of AHP

It’s a crucial first step in understanding the limitations of this debilitating disease.

Signs and Symptoms
Living with acute hepatic porphyria (AHP)

Living with AHP

Take the first steps of learning how to manage symptoms and finding a supportive community.

Managing AHP
Discuss your experience with acute hepatic porphyria (AHP)

Discuss your experience

Talking to your doctor can lead to a better understanding of AHP.

Start Questionnaire
A person discussing acute hepatic porphyria (AHP) with a doctor

Discover ways to take action

There are testing options available to help you confirm an AHP diagnosis.

Get Testing Info 
 

Connect with a Patient Education Liaison (PEL)

PELs are professionals with backgrounds in nursing—educating people and their families about AHP.

Find Support

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